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Courtney,
Welcome, I am glad you found us.
Like you I have a mild form of MDS. Mine is known as 5q- meaning that part of the long arm of chromosome 5 is missing in most of my cells. I have been on Aranesp for a year now. My hgb hovers just below normal, and is holding steady.
I was diagnosed because I had an unexpalained anemia, so I was sent to a hematologist who diagnosed me with a bone marrow biopsy. Other than twice a month visits to the local hospital for my injections, I am fine.
Really, the most difficult aspects for me have been the emotional adjustment to having a serious disease, and dealing with the expense of the Aranesp.
Feel free to ask anything. I am sure someone can help.
Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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