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Old Tue Jun 18, 2019, 03:52 PM
Owen M Owen M is offline
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Join Date: Apr 2017
Location: High River, Alberta, Canada
Posts: 8
I have MDS Trilineage Hemaglobin WBC and Platelets. I was diagnosed in Oct 2012 with 4/% blasts and watch and wait until 2015. Hemoglobin took a dive and went on Epotine-alpha 40,000 units which I self inject once a week. Hemoglobin came back up but still half of normal. In 2017 WBC went down and then Platelets so started on Vidaza. Blasts at 6%. Have just finished 29th cycle of Vidaza ( 7 on and 21 off dosage 162.5) Blasts 3% 6 months ago. Last CBC MAY 31, Hemaglobin 135 , WBC 2.4 and Platelets 101 although my Platelets jump all over the place and a couple of times have been in low normal this year. Too old for a transplant but have never had a transfusion. A lack of stamina is my biggest obstacle.
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