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Old Thu Aug 6, 2015, 05:46 PM
Maura R Maura R is offline
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Join Date: Aug 2015
Location: Hyde Park, NY
Posts: 20
Angry My mom was diagnosed today with MDS

Hi everyone,

Looking for some help here!! My mom was diagnosed with MDS today and from what the doctor told us, I'm blown away...the news was not good. I've done alot of reading on this disease, but have never seen anything that said it's terminal. I was basically told today, if we don't do any treatmenet, my mom will pass in 6 months...and with treatment, (1 pill a day for 5 days, once a month or 1 pill a day for 21 days.) and 2 visits to the doctor's a week for blood level check and blood transfusions. With this treatment, the doctor said my mom will have at least 1-2 years.
When asked what the side effects were, she really wouldn't commit to anything, so I'm asking anyone out there...what are we really up against here? How bad is the treatment going to be for my mom. I want her here with me, but I don't want her last few years left to be in pain or discomfort. Please help me understand what is happening...thank you so much!!!
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