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Old Thu Sep 1, 2011, 12:13 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
I have Pure red cell aplasia, so only my red cells are affected. My last Hg was 11.9 (below normal for men) but I have slowly been able to reduce my cyclosporine which is has more side effects for me than the Danazol. Unfortunately, none of the illnesses on these boards have quick fixes. Type A personalities must go wild.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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