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Old Mon Jan 6, 2014, 09:18 AM
Mseth Mseth is offline
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Join Date: Sep 2013
Location: New Delhi, India
Posts: 186
Hi Jayc,

My mother is transfusion dependent, she has received 22 pRBC since April 2013. After 20 units, the doctor wanted her to start chelation with an exjade equivalent in India by the name Asunra. I was extremely nervous about her starting the drug due to the adverse effects i had read about. She started in Dec 2013 with 100 mg, then 200 mg and now is on 400 mg/day. She is able to tolerate it well, so far and may increase slowly. Ferritin just before chelation was 3600and after 2 weeks it came down to 3100.
Her liver and kidney function is also fine after start of chelation. We will keep a close watch on the kidney & liver as she increases the dose/day.
How did your doctor diagnose iron in the liver? Some doctors say believe iron overload does not affect the body for atleast 3-4 years, some say 10 years, i guess noone really knows.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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