Hi, I am new here. My mom was diagnosed with CML a year ago February.
Her doctor's said she had about 2 years and there is no cure. The doctors told her she could have a bone marrow transplant which could provide a possible cure. So she decided to go for it. Because she had no relatives that could donate stem cells they did find a unrelated donor. The doctors were very positive because the match was a strong one.
She had her transplant February 13th. and was release to the hospital out patient location 2 weeks later. Everything was going well until the Easter weekend when she developed diarrea and not just a bit but liters of it.
We found out she developed GVHD of the gut. They did not have a lot of progress with the standard treatments. She now has steroid resistant GVHD grade 4. To say the least this has been extremely stressful for all involved.
2 weeks ago she had a bad seizure. They believe was from the cyclosporine she was taking.
We were told she has only a 20% chance now of making through this.
I am just wondering if anyone else out there has had experience with this.
thanks
