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Old Sat Oct 29, 2016, 10:10 PM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Hi Data. Does your marrow have any increased blasts? Are you 100 %donor or is the chimerism changed? Any increase in dysplastic cells? When I started relapsing they took me off drugs to prevent Gvhd thinking some Gvhd is good and may help fight off a relapse. We didn't have any stem cells in the freezer so a boost wasn't an option. Of course my experience didn't salvage the transplant. I'm not sure the is enough info to know if the transplant is failing. I have a transplant friend who's numbers also tanked. He ended up getting spleen removed which was complicated but resolved everything. He's now 2.5 years out and feeling great. Have they looked at spleen?
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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