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Old Wed Jul 12, 2017, 04:38 PM
rar rar is offline
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Join Date: Mar 2014
Location: colorado
Posts: 215
A certain amount of GVHD is positive. It means that relapse is less likely to happen. I had all of what you are going through now+. I spent 2 months in the hospital. I went for 3 months without eating or drinking. I survived! It is now 3 years since transplant and the GVHD is not gone but is much better.

For the rash they kept increasing prednisone. It leveled off at 120 mg. a day. I have been on it for 3 years and it caused adrenal failure. Without the transplant I would be dead by now so I have no regrets. Any questions?

For my saga of my first 16 months post transplant search on "16 months past SCT" by rar

Ray

Last edited by rar : Wed Jul 12, 2017 at 04:56 PM. Reason: added info
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