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Old Tue Jan 2, 2018, 12:54 PM
gramous gramous is offline
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Join Date: Apr 2012
Location: belgium
Posts: 73
Hi Patty, my partner was diagnosed with RARS-T in januari 2011 and had that for sure since 2009 (low blood results but no conformition from a bmb). He's now on Watch and wait since 7 years and doing good. He has had 4 unit blood the last five years. his hemo is between 7,5 and 10... so no experience with medecine. RARS is a subtype where the patient are frequent on Watch and wait. Viddazza doesn't work for this type of patient. Some has good result with dacogen of revlimid. kind regards, béné
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boyfriend with RARS-T dx 11/02//dx : hb 11,5; plt 870000, wh : 6500//Before fasting cure (13/04): hb: 8,9; plt 2200000; white:6000//After fasting cure (14/09): hb 12,5; platelets 400000, wh 3000.//Now (15/08) : hb : 11,plt : 650000, wh 3000// hydrea 1c/day and cardioaspirin, 1c/day,age: 56 y.
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