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Old Wed Jul 16, 2014, 11:20 AM
Mseth Mseth is offline
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Join Date: Sep 2013
Location: New Delhi, India
Posts: 186
10 yrs of transfusions

Hi usaf1125,

My mother is on a supportive care regime of pRBC transfusions for last 16 months, almost 40 units so far, averaging 2 units every 3 weeks.
Have you had prolonged spells of low grade fevers? She is currently battling a fever for last few weeks without any conclusive diagnosis on the cause. Maybe it is because of mds.
Have your other counts- whites and platelets remained stable in these last 10 years?

Thanks in advance for your reply.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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