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Old Wed Sep 30, 2015, 11:23 AM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hello HopeandHappiness, we are all sorry to hear that you have PNH. As you prob alrdy know, PNH is usually diagnosed in early adulthood and freq in women after becoming pregnant. I began having sympts in my early 30's, but was nvr diag until I was abt 41. PNH can be succ managed during pregnancy, and there are many studies showing this. one example is

http://www.bloodjournal.org/content/...o-checked=true

as far as transplants are concerned, I am a part of this study

https://ash.confex.com/ash/2011/webp...aper44763.html

all of us here are more than happy to assist you in your PNH diagnosis. I was sort of freaked out by mine, but I did my best to remain positive, and so far so good.

Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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