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Old Tue Apr 24, 2012, 04:59 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Thalidomide + Revolade (Promacta)

Hi Neel,
As far as I understand has your father has been treated with Thalidomide since April 2011. He initially had positive effect but now the drug is not working so well. Is it not possible to change to Vidaza that is the first drug for MDS patients?

Good that your doctor is trying Revolade (Promacta) for low platelets. I think it is common that the drug isn't working directly.

All infections will give low counts and it is difficult to evaluate the effect of for example Revolade when your father has high grade fever.

If his WBCs are low he perhaps needs Neupogen or similar drugs that can increase the WBCs and prevent infections.
Kind regards
Birgitta-A
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