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Old Tue Aug 21, 2012, 06:34 PM
sandem01 sandem01 is offline
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Join Date: Jul 2010
Location: Spartanburg, South Carolina
Posts: 18
Worst Week Ends with Unexpected Improvement

My dad went to the ER last Saturday - August 11 - and he was sent home 2 days later on Monday. At the hospital, he was given 2 units of blood, fluids and tons of antibiotics. They never really said if he actually had an infection, but couldn't find anything wrong, so that's why he was sent home. That night was horrible: he was extremely weak, kept peeing on himself, etc. He had no appetite, acted senile (or drugged), could only talk by almost whispering. Hospice came by on Tuesday and brought a walker, a wheelchair, oxygen tank, adult diapers (pull-ups) and pads for the bed. Each day he has gotten stronger and his appetite has come back. The doctor had told my mom on the Monday he was sent home (by phone) that he thought he might be transitioning into AML, so would not be getting Revlimid. Well, we all thought that he would get worse every day, instead of better! He even ate a bacon cheeseburger for lunch today! It's gotten to the point where he just uses the walker instead of the wheelchair. He is even talking a lot more and being more like himself. The only thing is that today he had an accident when he couldn't get to the bathroom in time. I was the one helping him and cleaned the mess. He had terrible diarrhea. I just think it's strange (although great!) that he would improve if he has AML. Maybe it's just the MDS and how it's affecting him.
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Jill, daughter of Joe, age 76; dx mds RAEB-2 in 3/2010; Low wbc and low hgb, platelets normal; Put on Dacogen for 1.5 years, worked great until 3/12; Vidaza treatment next, 5 rounds - no improvement. Passed away from mds 11/13/12 after a long fight
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