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Old Sat Jan 22, 2011, 07:27 PM
Lisa V Lisa V is offline
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Join Date: Aug 2006
Location: Waimanalo, Hawaii
Posts: 401
Yes, the waiting and the second-guessing is hard on everyone, especially at first. After a while it gets a little easier, especially when the counts start to creep up instead of down, but the idea that this is something you can be done with quickly and move on and forget about is something you'll probably have to let go of. This is your new reality, for better or for worse. That's not necessarily all a bad thing, even though it probably feels like the bottom has dropped out of your world. You can use that to connect with others who are going through the same thing, and to educate yourself and become an active participant in your daughter's treatment. Those are the things that helped me to cope during the early days, and I still value the sense of community I've found on forums like this one.
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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