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Old Tue Feb 1, 2011, 11:49 PM
Jen B Jen B is offline
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Join Date: Jun 2009
Location: Glendale California
Posts: 42
Hi Kelly,
My son was 3-1/2 when he was diagnosed in December of 2008. His big brother wasn't a match for him either. We went through horse ATG and he had a partial response - enough to keep him out of the hospital for long chunks of time. Some patients go for a second round of rabbit ATG if the horse doesn't help, but that is being discussed whether or not the second round or straight to transplant is a better option.

This disease requires so much waiting and patience - of which I have very little. Hope for remission with the ATG, but put her name on the list to look for a match in case transplant is the way you have to go. You don't want to have them start looking when you are in need at that moment.

Feel free to e-mail me if you want to chat.
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Mother of Ethan, diagnosed with SAA at age 3-1/2 Dec. 2008; Treated with ATG(h) Dec 2008 and ongoing Cyclosporine. MUD BMT 11/10/2009, 10/10 match
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