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I completely understand your concern. My son, who is now 17 has has hypocellular bone marrow (30%) since the age of 14. He has had a history of neutropenia, low RBC, and low iron stores. He has had 8 bone marrow biopsies which show nothing thus far (other than hypocellular marrow). We live in Ohio and his hematologist are at Nationwide Childrens Hospital. We have traveled to NIH and will be traveling to Boston Childrens Hospital next week to see a Doctor that specializes in bone marrow failure.
I have been searching for someone with a similar situation. My son is, for the most part, a healthy thriving teenage boy. This is puzzling to many doctors he has seen thus far.
He is under close watch because his father had leukemia and his brother has non-Hodgkins lymphoma.
Please let me know if there is any specific questions you may have. Prayers to you and your daughter.
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