[squirrellypoo]

Welcome, stephy!

Do you know if your consultant has been discussing your case with Prof Judith Marsh at Kings? She's the leading researcher and specialist in Aplastic Anaemia in the UK and as AA is still a rare disease, it's really worth getting her input on your best course of treatment.

I got referred to her a year ago, and although my diagnosis was altered to be hypo-MDS (which wasn't a bad thing as I then came under the care of Prof Mufti, who's the big MDS specialist at Kings!), I still find my clinic appointments with her to be SO useful - she can answer questions that even the other consultants there couldn't explain. I had my BMT there this summer in their dedicated BMT ward, the Derek Mitchell Unit, and the twin haematology ward, Davidson, is where the ATG patients (and us post-BMTers) go. I cannot speak highly enough about the care and the staff at Kings, and if I were you I'd totally push to get your treatment there if at all possible, because they (and Guys, to an extent) really know their stuff when it comes to haematological disorders. Patients from all over the world fly to Kings for treatment, so we're really liucky that we're already close by in the same city.