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Hello Rita,
As Hopeful said, I would strongly recommend getting an opinion from an MDS expert,( if you are not already). If you go to the MDS foundation website they have a list of MDS Centers of Excellence in many countries. The Netherlands has 2 listed, one in Amsterdam. Also are you in the high risk or low risk category by IPSS score? Did you have excess blasts or cytogenetic abnormalites? If you are low risk, Dr Fenaux in Paris has written a recent good review article on how he treats MDS in the May 23rd issue of "Blood". Birgitta has left a link to this article in one of her recent postings. He mentions using ATG with or without cyclosporine but there are certain characteristics which he lists which might predict a better response to ATG or immunosuppressive therapy such as hypocellularity, younger age, positive HLADR15 genotype, etc. Have you been checked for that genotype? I wish you well. It is a difficult decision so you need all the knowledge about options that you can get. Tytd
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possible low to int-1 MDS with predominant thrombocytopenia, mild anemia, dx 7/08, in watch and wait mode
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