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Rhonda,
Welcome to the group. I wish I could give you some answers. The truth is that MDS is so different in every patient. Does he have any chromosome abnormalities? Maybe it is not moving as fast as you think. Remember, he has been treated for anemia for 6-8 years. Which likely means he has had it for some time. How familiar with MDS is his hematologist? It is best to work with someone who knows the disease and its many faces. A Center of Excellence if there is one he can get to. Does he have excess blasts? Now I don't really know for sure, but I thought Viazda was used more for excess blasts (I could be wrong though). Was he ever on Aranesp or Procrit? Many people live quite some time with MDS.
I am fairly new to this also. I was diagnosed last November 5q- RA. I have been on Aranesp since February. It keeps my hgb in the 11 range.
I found all types of info by googling MDS, myelodysplastic syndrome, life expectency, etc.
Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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