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Old Tue Jun 26, 2007, 04:45 PM
Linda Linda is offline
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Join Date: Sep 2006
Location: Goldsboro, NC
Posts: 67
Welcome to the group

My husband gets shots of Neupogen when his white count is low. He even had it during Vidaza treatment as well. Some get Neulasta. Has the doctor considered this?
Bob did well with Vidaza for about 10 months. He has been changed to Dacogen to try to get ready for a BMT. Now he has been receiving platelets, and 2 units of blood. He hasn't had to have these in over a year.

Here are some links that may help:

http://www.aplastic.org/aplastic/

http://cancer.caring4health.com/Acut...8_C311524.aspx

http://www.allaboutmds.com/corporate...upport%20Group

http://www.leukemia-lymphoma.org/att...1098115974.pdf

http://www.leukemia-lymphoma.org/att...1141419978.pdf

http://www.mds-foundation.org/pdf/6-...nthandbook.pdf

http://www.ib014a7519.f2s.com/rlb/My...siaArticle.htm

These are some that I have depended on. Hope this helps. This disease is very individualized. Everyone experiences different symptoms, and reacts differently to treatments. I hope this forum is some help to you as it has been for us. Your uncle is in our prayers.
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Linda, Wife of Bob, dx REAB-1 19 Jan. 06. Beginning numbers 19% blasts, Vidaza for 10 cycles then stopped responding, as of Apr 07 REAB-T Blasts at 20 (AML). 2 cycles of Dacogen May and June, 3rd in Sep. Counts bottomed out (WBC and Plts). BMB in Oct. showed blasts at 51%. NC
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