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Hello mmaliff. I'm sure all of us on this forum can relate to what you are going through right now with a new diagnosis and so much to learn. Dan's knowledgeable explanations are so helpful.
I often had weak, shaky legs when my blast count was above normal. However, I didn't let it stop me walking. In fact I often found that the weakness would disappear after walking for a while. Exercise for MDS sufferers is still very important for keeping our blood circulating, unless one is incapable of course. My weak legs went away when my blasts dropped back into normal range.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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