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Old Sat Dec 22, 2018, 07:18 PM
Naive Naive is offline
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Join Date: Jul 2016
Location: Gold Coast, Queensland, Australia
Posts: 77
I thought I’d let you know the biopsies were definitely sarcoidosis and not lymphoma. Now I have to have brain and spinal cord MRI. Neuro ophthalmologist review. Heart assessment (ECG,echo, holter monitor). EMG. I suspect when I see the haematologist I will have a repeat bone marrow biopsy to look for sarcoidosis as well. After these tests we may proceed to PET scan. I have tested positive for skin, spleen and lymph node sarcoidosis with suspicion that it is very widespread due to heart arrhythmia, abnormal liver function tests, high urinary albumin, central vision loss, and the spots on the spine and brain. On the one hand it’s good news..on the other hand...do I really need yet another disease...
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