View Single Post
Old Thu Oct 26, 2017, 03:24 PM
donna j. donna j. is offline
Join Date: Sep 2011
Location: long island, new york
Posts: 110

After 6 yrs post transplant and 5 yrs cgvhd my dr wants me to try this drug. I have been on pred now @ 5 mg daily and methotrexate 10mg 1x a week. Completed 2 yrs of photopheresis. My gvhd is scored 3 in lungs but skin, eyes, muscles and digestive are at 1. I am 70 yrs and dont know if i am dealing with gvhd anymore. I have lost much mobility from steroids. Am concerned over starting new drug with serious side effects. Anyone have experience or knowledge of drug? Thanks so much
f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
Reply With Quote