Thread: Any one in UK with AA who has not responded to ATG and ciclosporine?
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Old Tue May 17, 2011, 08:00 AM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
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Quote:
Originally Posted by BerryP View Post
Consultant said he will contact Kings to see where we go next
Hi Berry.

I just wanted to pick this part out because this is really a fantastic idea. Prof Judith Marsh at King's is one of the leading specialists and researchers in AA in the whole world, and she is just SO knowledgeable about the subtle nuances in AA. And if your AA turns out to be hypocellular MDS (as they're really difficult to distinguish), Prof Mufti is the equally superlative MDS specialist at Kings.

I had my transplant there two years ago and I really can't recommend them enough. Definitely have your consultant speak with them, and if it's at all possible, travel down yourself to speak with Prof Marsh about your results and future treatment options.

cheers, melissa
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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