Thread: cGVHD
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Old Mon Dec 10, 2007, 12:54 PM
Ruth Cuadra Ruth Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 616
Yes, I was off all immunosuppressants by about the 5th year. I switched from CSA to CellCept in the 2nd year because it was considered to be better for controlling my cGVHD, which it was and with no side effects. The taper off CellCept was slow and took about two years.

Now I take only 10mg/day of prednisone, which I need because my adrenals don't produce enough naturally (a condition that pre-dates my transplant), synthroid, prometrium (hormones), neurontin (for muscle cramps), and ambien (for sleep).

Regards,
Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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