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Old Wed Sep 16, 2009, 12:26 AM
Jen B Jen B is offline
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Join Date: Jun 2009
Location: Glendale California
Posts: 42
home pump

Hey Steven,
Yes - young but worldly at this point. More biology classes in real time than he should have in his life time.

Now they have us on a home pump 8 hours a day for 2 days of the iron chelation. I think we will also be getting injections before packed red cells for good measure. They are being pretty aggressive with his iron incase we go to transplant.

Next week is a marrow biopsy, and then a decision. Maybe October BMT for us. Part of me is very nervous, another just wants some solid direction on this thing for him. The isolation is pretty hard on such a little one.
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Mother of Ethan, diagnosed with SAA at age 3-1/2 Dec. 2008; Treated with ATG(h) Dec 2008 and ongoing Cyclosporine. MUD BMT 11/10/2009, 10/10 match
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