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Old Wed Sep 7, 2011, 06:21 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
A little more info on B12....There is an active form with absorbs more easily. It's the Methyl form. Most are the Cyno form. The latter needs to be converted. Also, dosage is key when trying to build/restore levels. Even though the body only needs a small amount each day, you need to take quite a bit to ensure it gets absorbed. When restoring B12, many will take 5000mcg, which is 5 MG of the Methyl form of B12 until it comes back up to normal and then go drop down to 10000 mcg as a maintenance dose. In your son's case, I would probably start with 1000 mcg and work up to 5000 mcg. Some find B12 energizing, others find it puts them to sleep.

Has he been checked for diabetes? It's very frustrating to watch all of this and not get any answers. Like Hopeful said, good protein and fats at each meal is critical. When John got out of the hospital, we too had to increase protein intake. One fat that we added in was organic cold press coconut oil. It's a healthy fat that has many benefits. It's converted to energy quickly without having to be processed by the liver.

Another thing to check are his hormones. Find out how his thyroid and testosterone are.

Be sure to get copies of all his labs so you can see them and keep track of them. Too many time, there are abnormal results they don't even tell you about.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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