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Old Fri Sep 13, 2013, 12:39 AM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Kathy thank you so much! I really appreciate your answer! It is exactly what I needed to read. Thank you for all the good advice and support you have given to me in this thread and others
I am happy your husband is cont to improve! I have been thinking of y'all. I LOVE the creative advise on sitting in the garage! My husband will appreciate that. Hes always been a fan of sitting on the porch or in the garage at the end of the day. (even in our teens)
Wizbang good luck on your upcoming BMT we will be right there w u! When does yours start?
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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