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Old Mon Jun 9, 2008, 11:28 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Just so you know.....there are various forms of B12. Methlycolbamin is the more bio-available form and does not require your body to convert it to a usable form. Many studies have shown that oral methly B12 supplementation is as effective as the shot even in those whose malabsorb. Most shots are the cyno form of B12. So keep this in mind if your son does not do well with the shots. John takes 1000mcg of oral methly B12. He initially took 5000mcg/day and now does 1000mcg/3x week. You should also make sure Henry is getting the other B vitamins, especially folate.

They do have the more bio-available forms of folate, b6 and b1 if needed so keep this in the back of your mind for possible later use.

Also, with his digestive issues, bacteria overgrowth, of the wrong kind, interferes with B12 absorbtion/utilization. It think the bacteria uses it. Another reason why you see so many with autism using probiotics to rebalance the gut flora.

Has Henry had an Organic Acids profile done? It a 24 hour urine sample that looks at many things. John did one from Great Plains Labs.

http://www.greatplainslaboratory.com/home/eng/home.asp
http://www.ei-resource.org/laboratory-tests/
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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