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Old Tue Jun 10, 2008, 09:41 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Yes I've heard of him....many mom's and dad love him. He's very well respected and is very responsive. And that is great about his wife having experience with special needs children.

I would really pin down your hemo on "why" no B12 at this point. She needs to be more specific on this. Sounds like you and your husband will have to be the ones to decide what to go forward with regarding any treatments recommended between the Hemo and DAN doctor. It a tough role but crucial. It takes quite a bit courage to step up to this but I see that moms are really good at it.

And the point the DAN dr make about Henry's ability to clear toxins/drugs is important because that must be considered if and when he has treatment for the AA once it's clearly diagnosed.

Wishing you only the best.....

Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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