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Old Sun Jan 25, 2009, 01:47 PM
dkimmel dkimmel is offline
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Join Date: Feb 2008
Location: OH
Posts: 15
Sorry my post was so brief earlier, I hadn't had enough coffee yet. Let me start by saying how sorry I am to hear about your son. I can't imagine how you must feel. This has really got to be tough on a teenager. But fortunately you are seeking out info. Don't let your doctor make you feel bad about it either
I don't know very much about ITP or AIHA. Hypocellular marrow can be associated with aplastic anemia, and PNH is a very rare hemolytic anemia. AA and PNH are very closely related. Since your son has hypocellular marrow and a hemolytic anemia, you might want to check into it, even if just to rule it out. There is a simple and specific test for PNH. It is called flow cytometry where they test for CD59 and sometimes CD55. Not very many labs do this test. Your doctor will probably have to send it somewhere. But having the correct diagnosis is paramount for recieving beneficial treatment. Again, if only to rule things out and make you more confident in his current diagnosis. Also I can't stress enough the importance of seeing a specialist in whatever disease your son has. Local hematologist just don't have the experience in these rare diseases. Please keep us posted.

Last edited by dkimmel : Sun Jan 25, 2009 at 02:31 PM.
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