Thread: High RISK MDS
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Old Thu Sep 20, 2012, 04:53 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
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MDS

Hi Momhope,
We still don't know if our disease will transform to AML - it is true that more patients with high risk MDS will get AML but most patients will have problems with infections due to low white blood cells or bleeding due to low platelets.

Vidaza is the first drug for MDS patients. A little more than 50% of the patients will respond. There are several other drugs that your mother can try if she isn't responding.
Kind regards
Birgitta-A
73 yo, dx MDS Interm-1 2006 with severe myelofibrosis. Tx dependent from dx. Supportive therapy with txs, drugs for iron overload and Neupogen for low WBC until 2010. Started Thalidomide´+ Prednisone 2010 with positive results.
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