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Mom and two sons with possible AA
Thank you so much for the response. We live in Pittsburgh, PA and the boys are being treated at Children's Hospital of Pittsburgh. Jordan is doing really well but I'm still concerned about the tapering off of cyclosporin. I think we need to give it more time because I don't want him to relapse.
As for my Jalen, I'm still in shock. We are thinking about going down to the NIH to see Dr. Young. We live in the suburbs in a new home. However, we just got our radon tested and it is extremely high. We are in the process of getting a system in the house that will help. Could that be the link? I'm not sure. My boys were always healthy but no one else in our area is sick.
We did all the testing on both boys and everything else came back negative.
At the time I accepted the fact that my younger one had this but can not accept that both of them have it. Its too crazy!
Marilin
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