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Old Mon Feb 20, 2017, 10:00 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Status check

Bailie,

Thanks for checking in. I haven't had too much to report and haven't seen a lot to respond to recently, but I am here lurking around. Overall health is improving, I still do a lot of photopheresis to help with cGVHD, and I am due to go in and get my right shoulder replaced in the next couple of months. Main complaint these days is continued issues with cGVHD, having to see the dermatologist every three months, or more, about popping up pre-cancerous skin issues, chronic fatigue issues, and then the pain in the shoulder, which continues to get worse. That will be three replaced joints and two acrylic enhanced eyes. I am developing some worsening necrosis in my left knee and ankle as well, which may mean more surgery, but I will gladly accept these issues in exchange for otherwise good health.

I hope that everyone else we have not seen any postings from are doing at least as well.

dan
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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