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Ray, thank you. You said, "This makes it difficult to sort out drug side effects from GVHD". That is what I have been feeling for some time. The drugs are powerful so is it the drugs or the SCT? As I weave my way through this I have decided it probably doesn't matter. I have found that I don't have a "normal" day. Each day seems to have its own personality.
Again, I salute you for your exercise routine. I can't imagine walking three miles a day. It is encouraging to hear what you are doing. I haven't had the effects of GVHD but I did relapse with a diagnosis of AML+Philadelphia chromosome. I still have no regrets for having chosen a SCT.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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