I have to happily disagree with your doctor. My husband's MDS started showing up in late 2008. They tried Campath and Cyclosporin to no avail and he needed over 125 blood/platelet transfusions. There was a time when his platelets were 4,000 and his neutrophils hit 0.0. He was the first MDS patient in a Promacta (Eltrombopag) clinical trial at The National Institutes of Health in Bethesda, Md. He started Promacta in March of 2011 and stopped taking the drug in the summer of 2012. He has been in remission ever since - now going on his 7th year with no MDS meds since Promacta. His whites are normal, reds hover around normal, and platelets stay around 100,000.
I wish you the best - and hope to see you prove your doctor wrong.
Take good care,
P.S. Adorable dog!
Last edited by Sally C : Fri May 4, 2018 at 12:42 PM.