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Old Sun Aug 24, 2014, 10:07 PM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Cheryl thank you yes he actually did have one chance to freeze. Honestly though I think (given lab results) that the ATG and other treatments and maybe just his body trying to stay strong or maybe all three (and maybe some unknown factor nothing to do w treatment or dx) had weaked what little was frozen. But they are still frozen so there is still a chance!! And that's awesome w that said I am at a point in my life that if not that's ok to. Because we have a lot of other things to fill us w happiness.
So either way.
I talked to a man who was able to father a child a couple years after transplant and have heard of two others. Wondering if anyone eles has?
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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