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Old Tue Nov 27, 2007, 04:55 PM
Ruth Cuadra Ruth Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 616
Hi, Michelle.

I had Pentamidine treatments after ATG too. The stuff does taste terrible. I'd describe it as a bitter aftertaste in the back of your mouth as you inhale. But it's not so horrible as to make the treatments impossible to tolerate. It was most important for me to have Albuterol as a pre-med before the Pentamidine to reduce the wheezing that always followed a treatment. Without the Albuterol, I would wheeze for an entire day and night, which was very unpleasant. It just takes a couple of extra minutes to do the Albuterol (also inhaled) and it saved a lot of discomfort.

Don't worry about the taste. Pentamidine is important to ward of lung infections that can be very nasty in an immune-suppressed person.

I don't have any experience with Valtrex or Dapsone, but I'm sure others who do will chime in.

Regards,
Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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