View Single Post
  #7  
Old Sat Dec 8, 2007, 02:16 PM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Vidaza

Hi Aaron,
You could look at Vidaza - http://www.vidaza.com - to learn about how it is given (injections) and the adverse reactions. Since your father perhaps can get lower counts initially it may be better that he lives in a place where they can follow his counts.

Your father is only 63 years and probably young enough for stem cell transplantation – that is the only treatment that can cure the disease.

I have MDS with myelofibrosis and pancytopenia. I get 2 units of red blood cells (RBC) every 4th week. For my low white blood cells I take 2 injections Neupogen/week. The Neupogen medication has increases my HGB and I will probably continue with 2 units of RBC:s every 5th week. Now I have got 49 units of RBC:s so my Serum Ferritin has increased and I get Desferal from a home pump 4 days after transfusion to decrease the iron overload.

It is difficult to treat MDS but many new drugs are in clinical trials (about 1100 drugs for MDS/AML) and I am waiting for better treatment.

Hope your father will get effective treatment!
Kind regards
Birgitta
68 yo, MDS interm-1 dx May 2006, asymptomatic
Reply With Quote