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Danielle, I've sent you a private email.
The hematologist you're talking about sounds like James Morton. Busy, busy, busy! But exceptionally good.
Please ring the Leukaemia Foundation so you can register for our telephone forum that's happening this Tuesday night. They really are a good place to ask a lot of questions, even ones that you wouldn't ask a doctor, just input from fellow sufferers.
Regards
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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