View Single Post
  #13  
Old Wed Apr 14, 2010, 05:45 AM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Vidaza

Hi King Farouk,
You are right about my treatment - since I am very afraid of adverse effects I only accept supportive treatment. I had severe marrow fibrosis from dx May 2006 (I had probably had MDS for years) and I don't think my bone marrow could tolerate Vidaza. As a matter of fact Vidaza is only approved for high risk MDS in the EU and I still have MDS Interm-1.

Stem cell transplantation has never been an option for me because I was 67 yo at dx and as far as I understand low age is a very important factor for a good result.

I am still asymptomatic and I am thankful for every day i can continue with transfusions, Desferal, Exjade and Neupogen. Even if my life won't be much longer I prefer high quality of life.

You know nobody really knows how Vidaza should be dosed according to my doctor who is a specialist in Vidaza treatment in MDS patients. It is common to evaluate the result after 6 cycles. Perhaps it is better to try another drug after 6 months if the blasts have increased and counts decreased. It is probably not possible to know the reason for the increased blast cells.

Thank you for offer about help - I am very interested in your contacts with GSK about Promacta/Revolade.
Kind regards
Birgitta-A
Reply With Quote