Jill, my case is different. I have copper deficiency so having copper infusions keep the bone marrow failure/MDS at bay. I don't particularly like medical procedures but I would love to have a BMB done to see what's happening in the marrow..I haven't had one for over 4 years and that last one showed that the MDS had improved (blood counts were pretty normal at the time) but my reds and whites were still dysplastic. My Physician seems to think I'm just going to go straight to AML at some point and it will be obvious from the blood tests. I trust my physician BUT he is a physician and not a haematologist so I have lingering doubts.
I don't have any control over what is happening so I've just had to learn to relax and accept my fate...whatever it is.