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Hi Neil
Quote:
Originally Posted by Neil Cuadra
Wow, Mike! You've been at this a long time! Not that you had a choice.
Have you had to deal with side effects (headaches, rashes, or anything else) from such regular use of Aranesp?
Are they keeping a watch out for matches for you in the international bone marrow registries? Things could have changed since you first looked. Would you still consider a transplant if you got an ideal match?
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Hi Neil
I have had reaction to the Aranesp. At one time I was concerned because of minor pain in my kidneys though that has gone away after switching out one proton pump inhibitor Previcid (long time use) for another (ranitidine). I have been on the Aranesp for well over 10 yrs. So far so good. I have not had a BMB in over 6 yrs. and have no idea how my marrow looks at this time. I may consider this option in the future once the downward slide begins to occur. Right now my Doc, says I have no expiration date so I am living as normal a life as possible. Latest count was hct 34 pl. 180 White cells 9.2
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Mike 54 year old guy from upstate NY. MDS RARS
DX 1993 Slow burn and on Darbpoieten. Several other treatments tried. HCT 26-30. RBC 2.40-2.60. Platelets low normal and White cells ok. 
Last edited by Mikey D : Fri May 13, 2016 at 10:31 AM.
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