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Hi Sheryl,
It's been a year since my diagnosis with bone marrow failure, and I still don't have a definitive diagnosis of AA or MDS despite 5 BMB's and consults with 6 different experts.
MDS and AA are overlapping diseases. The good news is that ATG can be effective in cases of hypocellular MDS that behave like AA. A young age is a good prognostic factor.
As Marlene pointed out, be sure he is tested for the genetic diseases.
I am curious why they think he has MDS. Does he have chromosonal abnormalities or significant dysplasia?
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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