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Hi Debbie
I have posted this twice now - hope it goes thru this time. I had my treatment last week, so far so good. My nadir period is 17-28 days after and they are true. Bad mouth sores and tired. errrrrrrr - I have one more treatment Nov 29th week, and then in December will do the biopsy to see where I am. If not working, I will be starting to look for donor. In a way, I wish we could start looking for a donor, I would love to have normal energy for a period of time. I have been following Mikes wonderful success and am so happy for you both. Thanks for asking and take care. Huggs to ya~~
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Susan Patient, 58, MDS, UPDATED 9/13
Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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