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Old Sat Apr 3, 2010, 06:11 PM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Hi Jill.

I had a totally different conditioning regime - no TBI and I had three chemo drugs that were olwer intensity so I'm afraid I can't comment much on those. I did take Norethisterone to stop my periods, though, and I took them for about 6 months post-transplant. No side effects from those at all! (You know, look for positives wherever you can!).

Don't get too stressed by all the possible side effects of everything - they're all really scary but they have to tell you everything that MIGHT happen even if the chances are low. Chances are they might not happen either!

May sounds like a long time away but it'll be here before you know it... Do they know who your donor will be? Since I see you're in CA, are you going to City of Hope for your transplant? I think there are quite a few forum members who've been there.

melissa
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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