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Old Tue Mar 20, 2012, 11:08 AM
Robi1Knobi Robi1Knobi is offline
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Join Date: Mar 2007
Location: Austin, Texas USA
Posts: 98
NIH Pharmacy

In case you are having trouble getting your meds before you run out (like I just did!), I suggest putting a weeks worth in a smaller bottle and when you get to that one, refill your medication .
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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