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Hate to use the phrase "new normal", but it's probably the case here...
Things take quite a while to get back to normal (from what I've read), and you need to adjust accordingly...
I've been told that you/we should be gargling with saline solution (salt and water) at least a few times a day as a preventative measure, this in addition to brushing your teeth 2-3 times per day...
A transplant nurse told me that as a preventative measure it works just as well as any other treatment for Mucositis (at least in certain studies)...
Hope this helps, and hope this issue goes away in the future...
All the Best!
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10  ; 5.5% blasts down to 3%, now 1% (post BMT)
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