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Hi David M,
I'm glad that you were able to fight off COVID!
I can relate to the mental sluggishness when your an HGB is below 11 and the challenge of starting a new job. Both are very difficult on there own! There is a BIG difference between HGB of 10 and even 11. Hang in there and remember that you were good enough to get the job!
It is interesting that your brother also has bone marrow issues.
Have you ever had genetic testing done?
Have you been tested for PNH before?
I am a little wary of Promacta for myself, as I have read that it may accelerate other abnormalities if your have them, like MDS(-7).
Have you considered EPO or do you have low EPO levels? It's not a fix, but may give you a boost.
I hope you are able to keep up the exercising! I think it helps your overall health - both physically and mentally.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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