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Old Sat Apr 25, 2015, 01:12 AM
maggiemag maggiemag is offline
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Join Date: Sep 2012
Location: Cincinnati, OH - United States
Posts: 92
Bailie, I wish I could be of some help,your situation does not sound like fun at all. Have the doctors indicated that your side effects may lessen after you have been on it awhile? That frequently does happen with many drugs. Have they considered altering your dosage at all? As you know, a drug holiday can also help sometimes once you've been on it a while.
Mags
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Margaret, age 68, dx MDS 5 q- 5/09- now RCMD; also MGUS. TP53 and TET2 mutations
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